This month has made me very confused and uncomfortable. I
feel as though my life has been shook up and put back together. That is because
I received state funding a few days ago, and with that state funding comes
rules and regulations that I’m not used to. They are also not used to having
somebody receiving this funding having such an active life like I do. So we
both have to work together, even though I don’t see it now, people keep telling
me it will benefit me in the long run. I was reminded by a song this month by
Green Day, called Good Riddance, I think that describes exactly what I am going
through.
I am also experiencing a lot of good things though. Cleo and
I were interviewed on my boss’s radio station, Disability Beat, a few months
ago about our upcoming business, which will probably be called No Limits with
two taglines that my aunt suggested. Thank you Aunt Sheri! Here is the
interview for those of you who want to hear it and if you would pass it on to
your contacts I would greatly appreciate it. www.disabilitybeat.com/MP3s/jessiandcleo.mp3
Also, I believe that
having a blog isn’t always necessarily for me. It is a way for me to reach out
to my contacts and help other people out when needed. This summer, I was
fortunate enough to meet a wonderful young woman at camp named Pearl Gannon.
Her muscular dystrophy has gotten to the point where she is in desperate need
for an accessible van to maintain her health and to be able to do the things
she loves to do. Including going to camps and participating in many wheelchair
sports. But she can’t do it without your help. So in honor of the Jewish New
Year, I am asking you please to help my friend out in any way you can, even if
it just is telling other people about her situation.
Thank you very much!
And I hope for those of you that it applies to that you will have a sweet,
happy, and healthy New Year with your family and friends. I know that I will
because my friend, Paula, is coming in right before it starts. Which means she
will set off good vibes for me. She has been through a lot this month herself
and I really am grateful that she will once again be able to make the trip up
here. September 1st marks my 5th year of living on my own. Thank you Mom
and Dad for helping to support me this far. I know it hasn’t been easy and I am
extremely thankful. Within those 5 years, I have learned so much, grown as a
person and developed my own views and opinions that help me to help others in my
situation. I am so grateful that I have had this opportunity to be able to live
on my own the way I want to, but I am mostly grateful that I can set a good
example for the agency that's helping me to recieve the state funding of a person that likes to live a productive and
meaningful life, and not one of what they are used to. I love to be one of
those people that make others think and go beyond what they are used to. And it
also marks the day that my cousin, Jordan, will be moving in to his own
apartment very close to where I live. Another good way to start off the New
Year! We are extremely excited, we don’t know who is more excited, me or him!
Here are the lyrics
of the song I mentioned above…
"Good Riddance (Time Of Your Life)"
Another turning point, a fork stuck in the road
Time grabs you by the wrist, directs you where to go
So make the best of this test, and don't ask why
It's not a question, but a lesson learned in time
It's something unpredictable, but in the end is right,
I hope you had the time of your life.
So take the photographs, and still frames in your mind
Hang it on a shelf in good health and good time
Tattoos of memories and dead skin on trial
For what it's worth it was worth all the while
It's something unpredictable, but in the end is right,
I hope you had the time of your life.
It's something unpredictable, but in the end is right,
I hope you had the time of your life.
It's something unpredictable, but in the end is right,
I hope you had the time of your
life.
Five
years and counting,
Jessica
